So I have just about lost all faith in the health care industry. I know I’ve talked about some of these issues before with doctors in regards to my husband’s health and my daughter’s recent dental procedures. This last incident takes the cake!
My husband has been battling Crohn’s for over 6 years now. It seems like it has just gotten worse over the years. Each flare up seems to get a little harder to control. We’ve seen a few different doctors over the years trying to find one that not only could help him medically but treated him like a human being as well, not just a file number. In search of some help one time we found a doctor that told us to “Just accept it, he’s not going to get any better, what do you want me to do? You have the internet like I do, look it up”. Now having a medical professional tell me to look it up on the internet is crazy, usually they tell you to stay OFF the internet. That being said I’ve spent hundreds of hours researching his condition trying to find any little thing that may help. I’ve read through post after post on support boards for Crohn’s sufferers.
We finally found a new primary doctor that we really like. She not only wants to help him, she recognizes that he is a human being, a dad, a provider. She knows he needs to feel well so that he can work and take care of his family. She had no hesitation to provide him with pain medication that he needs just to get off the sofa and go to work. After seeing this new doctor for a month she called his current gastroenterologist, trying to find out if he would see my husband sooner or find out if there was something he could do to get him some help faster. (Their idea of “squeezing him in and over booking” was two weeks later.) The GI dr told her that my husband has no history of being this bad and that he doesn’t need anything extra done. She told us this and after that was a little hesitant to help him until he saw a new GI. Which we were more than thrilled to do! We had originally liked his GI until the last office visit. He was mad at my husband for stopping his medication. It is a very dangerous medicine and my husband had trouble remembering to do it, it was a monthly injection and when he was feeling well, sometimes he’d forget. After missing it for 2 months he decided he was feeling OK so maybe he didn’t need it anymore. He had no issues for 18 months. After that his disease flared up again and we called the doctor. For 8 months after that he scolded us every time for stopping that medication. We kept telling him we understood and that we weren’t going to do it again, but that was never good enough.
Fast forward to Friday, we went to see his primary doctor again because my husband was suffering extreme fatigue and becoming depressed as well. After talking with her for almost an hour she had some wonderful suggestions and was very helpful. She then asked how his new GI was. We told her that we loved him and she said oh good, it didn’t seem like your old doctor was a good fit. Then what she said next shocked me, she said “I’m glad you like him, I just couldn’t believe when the other doctor said you were just trying to get pills out of me” I just couldn’t believe he would say that. She hinted at it the last visit but to actually come right out and say that the old doctor told her that he was just using her for pain meds was just ridiculous!
I am so thankful for these two new doctors and that she actually believed us, especially now when doctors are so skeptical of patients abusing drugs that actual people that need them can’t even get them. This disease is so frustrating to begin with and then to be treated like a druggie on top of it is just ridiculous. I really want to write a letter or file a complaint or something but I just don’t know if I should. I don’t want to make anything worse down the road but don’t want this doctor doing this to other patients as well. I just wish in all those hours of school they undergo to become a doctor somewhere along the line they taught them compassion as well!